Associate Director, US Patient Advocacy

About the role

Join us as we transform immunology and deliver medicines that help autoimmune patients get their lives back. argenx is preparing for multi-dimensional expansion to reach more patients through a rich pipeline of differentiated assets, led by VYVGART, our first-in-class neonatal Fc receptor blocker approved for the treatment of gMG, and with the potential to treat patients across dozens of severe autoimmune diseases. We are building a new kind of biotech company, one that maintains its roots as a science-based start-up and pushes our commitment to innovate across all corners of our business. We strive to inspire and grow our company, our partnerships, our science, and our people, because when we do, we deliver more for patients.  At   argenx, we are committed to putting the patient first. As a member of the US Patient Advocacy Team, you will play a key role within the broader   argenx   ecosystem in   integrating the   patient   voice early and often into everything we do to better serve patients and their communities.   This person will   be responsible for   acting as the primary point of contact for our external Patient Advocacy Organization (PAO) partners as well as our internal   argenx   teams to ensure we show up consistently as their partner of choice.   To be successful, this person will need to set and maintain an indication-level Advocacy strategy, communicate the strategy to internal/external partners, bring the patient voice into development milestones (e.g., end point selection, etc.), and partner with our cross-functional teams to show up for our patient communities for in-market indications during the moments that matter.   This is a remote-based position. To help meet the needs of the patient communities we serve, you will spend meaningful time in the geographies you cover, building relationships with   PAOs   and attending prioritized patient events either live or virtually as   appropriate. At times, these events may take place outside of standard business   hours,   a flexible schedule will be developed to accommodate evening and weekend work.   Key Responsibilities Include:   Patient Advocacy Organization + External Engagement Responsibilities   Develop and implement patient advocacy strategies and engagement plans for disease therapeutic areas, ensuring alignment with corporate   objectives   and strategies.   Effectively balance and prioritize both pipeline indications and in market indications ( i.e.   gMG   and CIDP).   Execute patient advocacy engagement strategy Nationally and/or in local geographies that are aligned with cross-functional teams for in-market indications, translating US and market strategies to actionable tactics & events   Build and manage relationships with US PAOs   Build understanding of patient needs through interactive engagement such as prioritized patient events, patient panels, and cross-functionally   identified   opportunities, etc.   Provide local support to patient services team during the patient onboarding process   Represent   argenx   externally at events & conferences to educate and engage with patients, empowering other teams to do so when necessary   Define and measure business impact at local, regional, and national events   Build and   maintain   proficiency   in the disease state, Patient Experience, and product knowledge to support the needs of the community     Internal Engagement and Cross Functional Responsibilities   Inform local market engagement by generating and synthesizing insights for teams   Work cross-functionally within the ecosystem of support at   argenx   to   identify   the needs and opportunities relevant to patient advocacy   Be a voice for the community within the organization and within the Advocacy team based on assigned pipeline & all in-market indications   Effectively manage internal operations, including compliant management of events, patient advocacy organization sponsorships, and budgeting process.   Build and own the Advocacy strategy for assigned indications from development through in-market in collaboration with your TA-level Advocacy colleagues   Ensure alignment of activities and prioritization to strategy through frameworks, standardization, and ways of working   Requirements:     Bachelor’s Degree   required   10 years industry or related experience   Proven capability and success implementing innovative programs within rare disease and with minority and underserved patient communities   Proven   track record   setting and   maintaining   adherence to an Advocacy strategy for a given   indication   or Therapeutic Area   Veeva experience and   proficiency   required   Experience with rare disease patient interactions and compliance   required   Willing to travel up to 50% of the time and attend events outside of business hours (e.g., weekends and evenings).   Flexible   schedule will be developed to accommodate evening and weekend work.   Skills, Knowledge & Abilities:   Passion for understanding and championing the needs of people living with rare diseases, their caregivers, and their community, resulting in elevated Patient Experience   S trong communication   skills with the ability to listen actively, express ideas fluently and succinctly both in person and in writing, and present effectively; especially important to understand the perspectives of and work collaboratively with other   argen x   internal stakeholders   Desire to integrate the patient voice into the end-to-end product lifecycle at   argenx   and the knowledge to know when, where, and how to do so   Preferences:   Advanced Degree   #LI-Remote ‎ For applicants in the United States: The annual base salary hiring range for this position is $164,000.00 - $225,500.00 USD. This range reflects our good faith estimate at the time of posting. Individual compensation is determined using objective, inclusive, and job-related criteria such as relevant experience, skills, demonstrated competencies and internal equity. This means actual pay may differ from the posted range when justified by these factors. Because market conditions evolve, pay ranges are reviewed regularly and may be adjusted to remain aligned with external benchmarks. This job is eligible to participate in our short-term and long-term incentive programs, subject to the terms and conditions of those plans and applicable policies. It also includes a comprehensive benefits package, including but not limited to retirement savings plans, health benefits and other benefits subject to the terms of the applicable plans and program guidelines. At argenx, all applicants are welcomed in an inclusive environment. They will receive equal consideration for employment without discrimination on the basis of race, color, religion, sex, sexual orientation, gender identity, national origin, protected veteran status, disability, or any other applicable legally protected characteristics. argenx is proud to be an equal opportunity employer. Before you submit your application, CV or any other personal details to us, please review our argenx Privacy Notice for Job Applicants to learn more about how argenx B.V. and its affiliates (“argenx”) will handle and protect your personal data. If you have any questions or you wish to exercise your privacy rights, please contact our Global Privacy Office by email at. If you require reasonable accommodation in completing your application, interviewing, or otherwise participating in the candidate selection process please contact us at. Only inquiries related to an accommodation request will receive a response.